Saturday, August 20, 2011

Denver Diary Day 26: Non-expanding Recreational Foam

Today was a great day in Denver...the weather was fantastic (which is code for waaayyy cooler than Charleston, SC!!!), we had a fabulous breakfast made for us by a local company, Cade made some new friends, and therapy was a success.  But I guess today really started last night...that was when Cade fell asleep on his own for the first time in months!!  You have no idea the joy I felt when I turned around and saw him curled up with his blanket fast asleep under the covers!  I would say it was because he was tired, but I'm pretty sure staying up 24 hours like his episode last week constitutes as pretty tired, and he definitely wasn't falling asleep alone then.  Plus the same thing happened tonight, which has really made me think.  Cade was placed on an anti-depressant for anxiety during the first part of the year...we couldn't take him into a store without him worrying about people "looking at him" and he was really struggling.  Just a few weeks on the meds helped with that, so we were happy.  But looking back, especially after the crazy drug interaction that we just lived through, I'm thinking that the meds were probably the beginning of his major sleeping problems.  Don't get me wrong...he's really always struggled with staying asleep.  But it's only over the last several months that we have had the struggles with actually getting him to sleep.  I'm on top of that and will be investigating it further...but our main prayer is that the anxiety will not return and we can just forgo that medicine right now.

Today's therapy was excellent.  I can say that Cade met a huge new goal today.  He actually sustained playing with Julianna, Eric, and I for the entire length of the therapy session.  I'm talking for 45 minutes, folks!!  That might seem like nothing...but for a little boy that just two months ago couldn't walk into the room and even choose what to play, it's enormous!!  It was so much fun for all of us to actually sustain play with Cade.  He was able to generate ideas and situations, and was very articulate during the session.  The toy of choice?  The infamous NERF Gun...

Cade and Eric had a blast shooting together.


Cade decided to make a "birthday cake" with the NERF ammunition and everyone celebrated.


Cade was teaching me how to use the NERF Gun...and how to play his game!

So I have always wondered what in the world NERF means.  We all know what it is,,,but what in the world does NERF stand for?!  So I looked it up.  Here's some Jeopardy knowledge for you -- it stands for "Non-expanding Recreational Foam."  That definition made me think, and I believe NERF was made for sensory kiddos just like mine (ok, so probably not really, but just go with me here...).  You see, Sensory Processing Disorder is a lot like NERF.  It seems to be "non-expanding" - sensory kids have an extremely tough time expanding themselves in most situations.  "Recreational" -- well, everything about Cade is recreational...he never stops moving!  And then there's "foam."  When I think of foam I think of a soft cushiony place -- a place that is sometimes hard to bend but will always cushion your fall.  Deep down Cade is such a sweet soul.  He loves people, and even though many times he has a tough time showing it, when he does let you in to that part of him it is precious.  That part of him is a cushion...something inside of him can envelope you when you are able to tap into it.  And I do believe that one day, when we get his extreme sensory needs under control, he will be able to be such a great friend with a sympathetic heart -- a soft place to fall.

So I find it only fitting that today's success involved simply NERF guns.  And I know that in years to come I will be able to look back and rejoice in those little plastic play toys, knowing that they were such an integral part of my little boy's recovery.

3 comments:

  1. I truly believe that you need to have your journal published! This is a disorder that many don't/didn't understand (myself included)until I read your entries. You never know how many people might be struggling with this and you never know who this could help! It sure is worth thinking about!!! Love you guys and continue to pray for you all! Kim Greene

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  2. I agree with the post that suggested you have your journals posted. Not only have you kept us up to date on your trials and tribulations but you are such an inspiration to all of us. It has certainly helped me to see things in a different perspective. I also think you should try to get on the Dr. Oz show. It would be a wonderful way to get the ball rolling on this topic. It is something most of us have never heard of but for those who have a child like Cade would certainly benefit from the recognition you would get, if you could get on there. I know you have a full plate right now and don't have time for anything else, but I wold love to see you on his show.
    Love you all and hope each day gets so much better.
    Aunt Betty

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  3. You guys are sweet...I cannot imagine anyone wanting to read over and over about our challenges. But you're right, I definitely grab up ANY piece of info about SPD because I need to hear from others who are struggling and what they are doing to help their kiddos. Aunt Betty - I would LOVE for SPD to be featured on Dr. Oz!! There was a story on Oprah a few months ago that did SUCH an injustice to SPD. The little boy had bi-polar and MANY other huge issues, but they tried to call it all SPD. The SPD Foundation started a writing campaign to the Oprah Show and she did finally put a link on her website to teh SPD Foundation for more information, but I think what people actually saw is that they remembered. This disorder is HUGELY under-publicized...and I personally believe there are so many kids that are diagnosed with other things that are really SPD.

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